Non-profit support organization with information, personal stories, and resources for families, parents, and medical professionals.
Information including possible causes and future prevention. Also a personal story.
A parent's personal experience, relating her daughter's story.
An internet hub providing facts about anencephaly. Includes fact sheets and links for pre-natal support, information, policy, grief support, and memorial sites.
Personal stories, photos, tips for creating memories, advice on taking photographs, and tips for midwives. [Information in English, German, French, Dutch, Spanish, Portuguese and Italian.]
Notes from Committee on Doctrine National Conference of Catholic Bishops (U.S.).
Designed for those who are determined to carry their unborn child to term despite the child's fatal condition. Actively solicits tips from other mothers and fathers who experienced this.
Online support group for women who have lost babies to anencephaly.
A Christian pro-life support group for parents those carrying to term.
Global Health Network support group open to anyone affected by anencephaly.
Health /
Mental_Health /
Grief,_Loss_and_Bereavement /
Support_Groups
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