Information about SUDEP and other epilepsy deaths. Bereavement support and information on SUDEP research. Free booklet for young people with epilepsy.
Maintained by someone with the disease, this site offers support, advice, and useful links.
A guided independent living experience designed to prepare adults diagnosed to live and work on their own. Includes services, history, gallery, opportunities and FAQs.
Offers information, events, issues, links and contact details.
Supportive club to help those with this disease. Includes free membership, message boards and chat room. Also joining instructions.
Details about this group which is for those who have thought of (or had) having brain surgery or Vagus Nerve Stimulator surgery. Registration required.
Non-Profit organization that has support groups for children and teens with epilepsy and parents of children with epilepsy support groups in the NYC area.
This is a group about doose and it has links to other websites but almost all information can be seen by non members of the group.
Providing world wide support for people with epilepsy. Includes FAQ's, links, support groups and a pen pal site.
For parents of children who have Doose Syndrome a rare, severe, intractable epilepsy of early childhood. Group provides support for parents along with insight into management of this disorder.
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