Lists types, places to chat, and websites.
Non-profit organanization advocating for families affected by the Mucopolysaccharide diseases. Located in Bangor, Maine, USA.
Founded to provide information and support to affected individuals and their families.
A non-profit organization supporting research for those suffering from Mucopolysaccharidosis, or MPS and their families. Articles, including one on the Ryan's current health status, and links.
A star studded fantasy hockey game and auction, allowing participants to play along side some of hockey's great alumni, while helping to educate both professionals and the general public about MPS and raise money for research.
A voluntary support group in the UK which represents children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases, their families, carers and professionals.
Offers a list of synonyms, a general discussion and further resources.
Describes the various types and looks particularly at behavioral and educational issues. Put together by the psychologist Michael B. Brown, Ph.D.
Talks about what the disorder is and treatments being used in clinical trials.
Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
Health /
Child_Health /
Special_Needs
|