About Apert Syndrome and how it has affected the life of a baby boy named TJ and his family.
Medical information including definition, major and related features of the condition, genetics.
General information about Apert syndrome with photographs of people with the condition. English version follows Swedish text.
Written by her father, this contains biographical detail about living with Apert syndrome.
Produced by Alliance of Genetic Support, this includes comprehensive information about the condition, an Apert listserve, newsgroup, links, webring and family homepages.
Resource for contacts, chat rooms, pen pals and other relevant links.
Written by father of child with Apert syndrome. Contains biographical detail, and links to Apert syndrome stories and support sites.
Frequently asked questions and answers on Apert syndrome.
A family support network for people affected by Apert syndrome and other craniofacial disorders.
BBC story on the discovery that children born of older fathers are at greater risk of developing Apert, and the mechanism behind that risk.
Health /
Conditions_and_Diseases /
Chronic_Illness
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