Sites are listed alphabetically by disease/condition.
National coalition of consumers, professionals, and genetic support groups to voice the common concerns of children, adults, and families living with, and at risk for, genetic conditions.
Non-profit voluntary support group for families affected by rare chromosome disorders.
Support group for families who have children with any chromosome 22 disorder, including trisomies, cat eye syndrome, translocations, deletions 22q11, 22q13, VCFS, Digeorge syndrome, rings and unique malformations.
A United Kingdom support organisation for parents of infants with Trisomy 13 and 18 and other related disorders.
Support and information for families of children with rare disorders.
Support Organization in the United States for Trisomy 18, 13, and other related disorders. Provides literature, conferences, newsletter, chapter information, and international contacts.
Family support organization which exists to ensure the early and accurate diagnosis of CdLS, promote research into the causes and manifestations of the syndrome, and help people with a diagnosis of CdLS, and others with similar characteristics, make informed decisions throughout their lifetime.
A support group for families and professionals interested in the chromosomal condition known as isodicentric 15 (formerly inverted duplication 15).
An active support site for the parents and families of children with Floating Harbor Syndrome.
Health /
Conditions_and_Diseases /
Genetic_Disorders
|